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The Hospital Is Our Second Home
A couple of days ago, in the afternoon of May 16th, Ashtyn threw up after eating a small lunch… a pretzel with cheese dip. I thought it was odd. She had not thrown up or been nauseated since February when she was extremely sick with mucositis. Thankfully, her stomach has tolerated chemotherapy quite well. I…
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Surgery Day
Gallstones are relatively uncommon in children and are not normally seen as a side effect of cancer or chemotherapy. We will never know what caused Ashtyn to get gallstones. Gallstones are small, stone-like objects that form when the liquid in the gallbladder hardens. Ashtyn’s gallbladder had quite a few stones stored. Stones in the gallbladder…
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Post-Op
I would say for the two days following surgery, Ashtyn has felt lousy. She is given Morphine and Oxycodone to help with her abdominal pain. She spends her day in bed moving as little as possible. Of course it is the most painful when she has to walk. Every three hours she gets out of…
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Roll With the Punches
In the post “Opposition Is Not a Bad Thing” I wrote, “In life and in cancer I have learned to ‘just go with it.’ I have to plan for the future and then roll with the punches as they come, adjust plans, adapt to the unexpected, embrace change, and face head on whatever life brings.…
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Emotionally Spent
Here are some statistics: It has been 116 days since Ashtyn was diagnosed with leukemia. She has spent 77 days and nights in the hospital as an inpatient. She has spent 39 days at home. Of the 39 days at home, 12 were spent at the hospital for doctor’s visits and other procedures. A total…
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Mind Over Matter
I had a short lecture with Ashtyn in the hospital when she woke up Monday. “When Michelangelo painted the Sistine Chapel ceiling and sculpted David, he had a vision of what he wanted it to look like. He knew what it was going to look like before he even started. Ashtyn, you need to have…
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From Ashtyn
I was really in a funk. I was sad and depressed. I was wasted. I was empty. Totally drained. The past few months took all my fight in me. I didn’t have the urge to keep fighting anymore. I was tired of fighting. Tired of spending time at the hospital. Tired of being sick. Tired…
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Ashtyn Invites The Army To A Party
Since I will be back in the hospital shortly, I would like to have a BBQ to celebrate the beginning of my bone marrow transplant. I would like to invite anyone who would like to join. I would love to see my army there. Use the contact link and email my mom if you need…
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As Social As She Can Be
Things are ever changing. Three days ago (Thursday) Ashtyn had surgery. She was so brave. On the way to the hospital we discussed whether or not she should get a new NG tube. Knowing that in the near future she would have days of radiation, chemotherapy, and the transplant, she wondered if she would be…
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Radiation Week
Monday followed a pattern that Ashtyn and I have become very used to. It was unpleasant and tough, then enjoyable and fabulous. It started out at noon when we went to Primary Children’s Hospital for a check up, final transplant teaching, and paperwork. By 1 pm we had not been seen by the transplant team.…