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Getting Back to “Normal”
The doctors came to Ashtyn’s room this morning, as they always do, to discuss the plan of the day. What are the concerns? How is her status? What changes need to be made? Everyone was pleased with how well she is doing and noticed her huge improvement. No changes were made. Stay the course. For…
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The Routine
I suppose Ashtyn and I are getting into a routine, though it is an unpredictable, unplanned routine that we take minute by minute. Nausea and pain is constantly on our minds. “Where’s the barf bag?” is a question she commonly asks. It’s like her security blanket, whether she is going to throw up into it…
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Life Is Good
Wednesday night was awful. Ashtyn went to bed around midnight. I turned the lights off close to 2:30 am, and at 4:30 am Ashtyn woke up and the only thing she could whisper was, “Mom, lay with me.” Sometimes she likes me to lay in her bed and other times she doesn’t I asked her, as…
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There is No Such Thing as a Bad Day
At the hospital there doesn’t seem to be a big difference between the day and night. Ashtyn is constantly being woken up every few hours, there are meds to be given at all hours of the day and night, and she has to go to the restroom every 3 hours no matter what time it is. This…
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Ashtyn’s Siblings Come To Visit
Yesterday Ashtyn really wanted Chandler, Morgan, and Ethan to come and visit her. She hadn’t seen them in 12 days and missed them terribly. I think Ashtyn also needed to see them to help recognize her strength and ability to be apart from them for now. My other kids needed to see Ashtyn healthy, happy, confident, strong,…
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I Could Not Have Planned It Better Myself
In the past I have always been one to plan. For years my Franklin Day Planner never left my side. I then converted to Google calendar downloaded to my iPhone. Each morning I had a good idea what my day had in store. Since being in the hospital I live hour by hour, not knowing how…
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As good as it gets in the hospital
I’m sitting with Ashtyn watching Ratatouille and am feeling such joy. Yes you heard me, joy. Joy because of the day Ashtyn had. Joy for the support that surrounds us. Joy because of peace. Joy because of hope. Today was the best day yet. What made today so good? Nothing went wrong. On top of…