We’re Going To Miss Them

By July 11, 2013Daily Life, Uncategorized

Ashtyn is going home today. She has come so far in five and a half months. I just shake my head at the miraculous course she has had. It is clear to me God’s hand has been in every detail of her life. I have no doubt the power that heavenly and earthly angels have had in helping us. I marvel at the love and support she has received from Ashtyn’s Army. I’m impressed by the blessings we have had and the lessons we’ve learned. If you were to ask if we would give back this trial and never have gone through it, the answer would be no. It hasn’t been easy and will continue to be a fight, however the experience has been life changing for the good.

Cancer Unit

Ashtyn has lived in the hospital much of the past five months. What has it been like to live in the hospital that long? It has been incredible. There were moments that were difficult, sad, scary, and overwhelming. But more often it was peaceful, calm, and surprisingly enjoyable. We have come to feel comfortable in the hospital environment and appreciate the many people there. Our hearts have grown very close to some of the staff members. Never do we walk the halls without talking to numerous individuals that we have come to love. I have had many uplifting conversations with nurses, as we talk about life, perspective, and love. I have talked with techs about visions and goals. We have interacted with doctors and so many other hospital staff who have known Ashtyn from the beginning and sincerely smile at her progress. There is no place on earth like the cancer floor at Primary Children’s Hospital. It contains a feeling of love and deep perspective that affects all those who spend time there. There is a strong spirit there that I rarely feel anywhere else.

Dave

Dave is a nurse who comes to work with heart and soul. He thought outside the box on how to make Ashtyn’s day better whether teaching her the ukulele or being vigilant with her medical needs. He showed sincere love from the moment he took care of Ashtyn months ago. Dave starts his day with a prayer and then works non stop in doing all he can for his patients. When he would take care of Ashtyn, we always got the warmest good morning greeting and then he would serve me, and Ashtyn if she could eat, hot chocolate and cookies for breakfast. Throughout the day, Dave would come in and out of Ashtyn’s room with a calm, upbeat, and positive spirit. On a hot Saturday morning a few weeks ago I was leaving for Millie’s Princess 5K Run to honor Millie, Ashtyn, and all our cancer kid heroes. Before leaving, Dave ran around the hospital floor getting me water bottles and a spray bottle so I wouldn’t get too hot. Always thinking. Always thoughtful.

Cammie painting her nails

Cammie painting her nails

Cammie, another nurse whom Ashtyn loves, has been brought to tears several times as we talk about life and her love for cancer kids. One evening Cammie promised Ashtyn she would paint her nails the following night when she came back to work. She was called off and didn’t come into work. The next day Cammie came in from home and painted Ashtyn’s nails on her day off.

Making her Smile

Making her Smile

Dorks

Dorks

Best foot / leg massage EVER

Best foot / leg massage EVER

Dylan playing cards with Ashtyn

Dylan playing cards with Ashtyn

Dylan is Ashtyn’s home health nurse. Even though she was in the hospital Dylan took time out of his day to visit her once a week. He didn’t just come to say hi and leave, his goal was to make her day better. He wanted her happy. He talked to her about fun things just to make her smile, gave her the best foot and leg massage ever, and played cards to help pass the time. Dylan is a familiar face that we love seeing.

A few nights ago I left the hospital to spend time with my other kids. I received this text from Ashtyn, “I’m in heaven. Sara (her nurse) gave me morphine, got more lotion, and is giving me the best foot rub. She’s the best. Also she is putting warm blankets on my feet. My feet finally feel better.” Other nights I have come back to the hospital to find out that nurses and techs had rubbed her feet and pampered her in any way they could.

I could never write long enough to include all the remarkable things we have experienced from our hospital family. There would be a notebook full of experiences written if I had thought to keep one. I will be forever grateful to have met those who have become so familiar to me while in the hospital. We will truly miss seeing their faces. We will miss being around their uplifting spirits. We will miss our conversations and their care.

During this cancer experience I have also formed relationships with parents who have had children with cancer or other illnesses. The bond with these parents require very little time spent together. Few words need to be spoken to express our support, understanding, and empathy we have for one another. I have learned much from these parents and am so grateful for their strength and example. Amanda and Brady lost their remarkable seven year old daughter to leukemia on June 18th. Millie was the strongest earthly angel you could ever know and I’m sure is one of the most powerful heavenly angels out there. Amanda and Brady faced leukemia for 3 1/2 years with a smile on their face. They never lost their faith and trust in God. They never lost their fun smiles and spirit of optimism. Amanda is known for saying, “happiness is a choice”. She is absolutely right. I look back at my life and am extremely grateful. I’m so happy.

Beginning of transplant Beginning of transplant

Ready to go home Ready to go home

Our view Our view

Room with a view Room with a view

Doing lung exercises to help get off oxygen Doing lung exercises to help get off oxygen

With physical therapy strengthening her arms With physical therapy strengthening her arms

Many hours were spent rubbing her sore feet Many hours were spent rubbing her sore feet

Volunteer therapy dog Volunteer therapy dog

Join the discussion 8 Comments

  • Cheri Cornelius says:

    So happy you get to go home!! You are truly inspiring!! Thank you for sharing with all of us.

    Cheri Cornelius

  • Gigi B says:

    Dear Precious “Girls”,
    Hip, hip, hooray! What a blessing to check up on you all this am and find this awesome news!!!! I’m thrilled beyond words!
    I LOVED coming to see you both and treasure the moments we shared. You were the best part of my trip!!! 🙂
    Continue the journey with courage, faith, and the strength you’ve garnered from the past and all will be well. You have my contact info., and I’m here 24/7. My granddaughters have all been delighted that we met and will be happy to know you have gone home. Like Dorothy and Toto….’there’s no place like home.”
    Two of my grands are here for 10 days and preparing to take them to Denver and do the Nature Museum and the Aquarium. Their father passed away 3 years ago this month and to celebrate his life, we take them and do special things. They have shown great courage the past few years….just like you, yet differently!
    Well, sweethearts – you are a family unit in its entirety. Enjoy, shout and scream it from the rooftops. Will continue to have you all in my prayers. I LOVE YOU!
    Blessings, Blessings, Blessings!!!!
    Always and forever,
    Gigi B.

  • Saima Leon says:

    Woweee!!! What great news! So thrilled to hear you have done so super well. Wish I was in Utah to cheer you on as you leave the hospital.
    Sis Leon

  • Jenn Crane says:

    Yay for you Ashtyn! I am so happy you get to go home. I have read every blog post your mom has written and prayed for you many times. Seeing this post makes me truly happy. Enjoy being home sweet girl!

  • Carol Bee says:

    It is always so humbling and inspiring to read your blog posts. Thank you so much for doing this as it helps all of the rest of us to realize how blessed we are and how close The Lord is to us, if we will open the door and turn to Him.

    We were in Hawaii with our son seeking medical attention when Millie passed. Her family lives in the ward of my good friend, Ann Maughan, who has helped to organize both of the runs for Millie. It tears at your heart to learn of all that little angel and her family endured. But their example is so inspiring as well.

    I sincerely hope that this seizure is a very minor bump in the road to Ashtyn’s full and total recovery. With all of your family members in our ward, you can be assured that our prayers are being raised in your family’s behalf.

  • Richard & Carolyn says:

    The best news ever!! May God continue to Bless and watch over you. All our Love & Prayers. XXXOOO

  • Amber and family says:

    YAY!!!!!!!!1

  • Lily Sheehan says:

    So happy for you Ashtyn! You have had a long journey and I am very proud of what you have accomplished. You are an inspiration to a lot of people. Ashtyn’s army will always and forever be on your side, ready to support you in any way

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